I'm Dying to Tell You
Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!
Podcasting since 2020 • 108 episodes
I'm Dying to Tell You
Latest Episodes
Questions About ALS? There's an App for That: Roon!
When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.Vikram Bhaskaran takes us through the painful jour...
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Season 6
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Episode 107
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50:58
Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action
What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9...
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Season 5
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Episode 106
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49:53
I AM ALS Turns 6: Community Teams Inspiring Change
Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients.Why is this so important? Becau...
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Season 5
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Episode 105
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1:06:29
Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack
Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the cr...
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Season 5
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Episode 104
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1:03:57
Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey
Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny’s story is one of inspiration, determinat...
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Season 5
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Episode 103
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54:36