I'm Dying to Tell You
Episodes
121 episodes
Erin Taylor and Her Mom Lily on Living Fully with ALS
Meet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS. Here, I sit down with Erin Taylor, diagnosed with ALS at 23, to hear what it’s like to...
Sam Cunningham: Trusting Your Body, Finding Your Voice, Facing ALS at 35
For six years, Sam Cunningham felt the subtle but persistent signs that something in his body wasn’t right—leg heaviness, twitching, and strength loss that didn’t add up. As an athlete,...
The Sisterhood She Built: A Tribute to Leah Stavenhagen
This episode is tender. In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking how young she was. How unfair it felt. But Leah didn’t shrink after her diagnosis...
Eric Paslay on “Come Into Our World,” a Song for ALS Awareness
Grammy-nominated, platinum-selling singer-songwriter Eric Paslay joins me to talk about about the night he drew my song idea out o...
Salym Liufau: Finding New Ways to Live with ALS for Her Four Children
In this deeply moving episode, I sit down with Salym Liufau, a 33-year-old mother of four living with ALS, whose grace and honesty have touched thousands online. Salym opens up about adaptin...
Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -2/2
In this second part of my chat with 33-year-old widow Melanie Lang, we talk about her & her husband Tyler’s biggest miracle, their daughter. Tyler only spent 6 weeks with his precious baby girl before he died of ALS at a young 33.
Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -1/2
I catch up with 33-year-old widow Melanie Lang to share how she and her husband Tyler faced ALS with relentless honesty, deep faith, and a simple motto that became their North Star: Don’t Waste A Day!
Veterans, ALS and the Will to Fight!
This Veterans Day episode brings together three service members living with ALS—Liz Fassler (Army), Ron Faretra (Air Force), and John Hudacek (Army)—to share how the discipline, teamwork, and purpose they learned in uniform now guide them throu...
Happy Hour with Her ALS Story and "Hop" of Zac Brown Band
In this Happy Hour Chat, I talk with Tina Cascio, Mira Hudson and Kelly McGinn, all young women who share their journey living with ALS after being diagnosed in their 20's and 30's. John Driskell Hopkins of Zac Brown Band who is also batt...
Supermilk's Jake Popyura: Navigating ALS with Humor & Music
This episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indie rock band
Life After ALS: A Journey of Healing and Hope
The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—four remarkable women who lost husbands and a sister to ALS—share their paths through grief towar...
Love, Legacy & Lou Gehrig Day: A Team Effort Against ALS
In this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation,
Elin Adcock - Her Journey Facing ALS and FTD Together
Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the charge to support families facing the same fight. When Elin's husband, Larry was diagnosed w...
Questions About ALS? There's an App for That: Roon!
When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.Vikram Bhaskaran takes us through the painful jour...
Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action
What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9...
I AM ALS Turns 6: Community Teams Inspiring Change
Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients.Why is this so important? Becau...
Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack
Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the cr...
Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey
Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny’s story is one of inspiration, determinat...
"Clayton Rakes" - Two Siblings’ Mission to Honor Their Dad and Fight ALS
What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are doing just that with their initiative, Clayton Rakes. Their story begins with a deeply person...
Animated Film, LUKi & the Lights: Helping Children Understand ALS/MND
"LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how their personal ALS/MND ...
Episode 100: A Chat with 100-Year-Old Mildred Kirschenbaum
To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media star and is happily sharing some life lessons of her ten decades. She not only became an author at 100, ...
Broadway's Aaron Lazar on Making the Impossible, Possible ... Even with ALS
In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. Aaron has been in the spotlight for over two decades in his successful career as a singer, actor and now spe...
Zac Brown Band's John Driskell Hopkins: An Update on ALS, Life and Music
Grateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band. Despite seeing some progressio...
Goode and Faithful Servant: A Chat with Kerry Goode
So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later...
Could it be ALS? - Bob Scannell on ALS Misdiagnosis
In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses before finally receiving ...