I'm Dying to Tell You
Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!
Episodes
108 episodes
Questions About ALS? There's an App for That: Roon!
When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father.Vikram Bhaskaran takes us through the painful jour...
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Season 6
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Episode 107
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50:58
Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action
What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9...
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Season 5
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Episode 106
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49:53
I AM ALS Turns 6: Community Teams Inspiring Change
Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients.Why is this so important? Becau...
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Season 5
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Episode 105
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1:06:29
Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack
Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the cr...
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Season 5
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Episode 104
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1:03:57
Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey
Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny’s story is one of inspiration, determinat...
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Season 5
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Episode 103
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54:36
"Clayton Rakes" - Two Siblings’ Mission to Honor Their Dad and Fight ALS
What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are doing just that with their initiative, Clayton Rakes. Their story begins with a deeply person...
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Season 5
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Episode 102
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37:10
Animated Film, LUKi & the Lights: Helping Children Understand ALS/MND
"LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how their personal ALS/MND ...
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Season 5
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Episode 101
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53:00
Episode 100: A Chat with 100-Year-Old Mildred Kirschenbaum
To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media star and is happily sharing some life lessons of her ten decades. She not only became an author at 100, ...
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Season 5
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Episode 100
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43:26
Broadway's Aaron Lazar on Making the Impossible, Possible ... Even with ALS
In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. Aaron has been in the spotlight for over two decades in his successful career as a singer, actor and now spe...
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Season 5
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Episode 99
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1:00:23
Zac Brown Band's John Driskell Hopkins: An Update on ALS, Life and Music
Grateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band. Despite seeing some progressio...
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Season 5
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Episode 98
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1:01:17
Goode and Faithful Servant: A Chat with Kerry Goode
So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later...
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Season 5
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Episode 97
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31:26
Could it be ALS? - Bob Scannell on ALS Misdiagnosis
In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses before finally receiving ...
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Season 5
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Episode 96
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43:05
“Staying Loudly” - Sam’s Positive Mindset with ALS
In this compelling podcast episode, I delve into an inspiring conversation with Sam Telgkamp, a resilient 27-year-old battling ALS. Despite her inability to speak due to the progressive nature of the disease, we explore her journey and outloo...
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Season 5
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Episode 95
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55:46
37-year-old Sara Bennett: Life, Death & Parenting with ALS
In this episode of ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio. At just 36 years old, Sara was confronted with a devastating diagnosis: ALS. In a candid and deeply moving conversat...
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Season 5
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Episode 94
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53:41
LOVE & SUPPORT from ALS Family of Faith
In the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as they illuminate the profound impact of the...
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Season 5
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Episode 93
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53:11
20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting
When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore t...
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Season 4
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Episode 92
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1:11:43
Rebuilding Together After ALS Loss: Juliet Taylor & Tim Abeska
In this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers. Realizing they lived in the same area and had common interests, they met for coffee and...
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Season 4
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Episode 91
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45:33
Community Building Amidst ALS: Karen (thekaregiver) & Tony Vick
Here you’ll meet Tony and Karen Vick. Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years. Karen, his dedicated wife, serves as his full-time caregiver, showcasing the strength of their bond. Despite faci...
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Season 4
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Episode 90
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52:53
How to Find Gratitude During Hard Times
In this episode, I talk about having gratitude even during hard times. I recorded this on Thanksgiving Day. Thanksgiving encourages us to pause and express gratitude for the positive aspects of our lives. For me, It always fos...
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Season 4
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Episode 89
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42:21
Amanda Stevens: Wife, Mom, Caregiver & Founder of AxeALS
Here I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres Show in 2019. Amanda and Eric were married only one month when Eric was diagno...
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Season 4
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Episode 88
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49:56
Teen Actor Lance Alexander: "From Junk to Hunk"
In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio. You might know Lance from his role as Elvis, a recurring role on the award-winning Netflix show “Family Reunion.” Like many, during the Pan...
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Season 4
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Episode 87
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45:39
Radio Legend Jim Scott: Living Positively with ALS
Here my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati. He has been heard all over the country during his 55+ years on the air, mostly on 700 WLW Radio. He simply is one of the most giving & p...
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Season 4
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Episode 86
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44:44
Military Veteran Kate Peters Battling the Enemy: ALS
Here I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters. She served in the USMC 2007-2015, USN 2015-2020 and served in Operation Iraqi Freedom. Kate is a mother of two boys, three and five and...
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Season 4
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Episode 85
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44:22
"Hope Fights Back" - Andrea Peet & Meredith Atwood
Here I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I'm absolutely thrilled to catch up with Andrea Lytle Peet again and meet Meredith Atwood in th...
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Season 4
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Episode 84
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48:15
"Ask Me Anything" - Host Q & A on Life, Outlook & My Terminal Illness
This episode is just me answering YOUR questions. I had a lot of requests for this format again, so I asked listeners to send in questions about anything and I answered them here. I'm so grateful for all the questions that came in, ...
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Season 4
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Episode 83
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39:09